Check back again soon for exciting new announcements from the CTC!
Many rare diseases are difficult to diagnose and have a wide range of severity. This little guy is on a far end of the spectrum. It took 5 years for a diagnosis.
We are excited to announce our November 2014 CTC Focus will be Epidermolysis Bullosa. If you would like to get involved or be featured, contact us now!
This month in the Center to Cure: Amyotrophic Lateral Sclerosis (ALS)
The CTC focusses on the current state of ALS in the United States.
This woman’s drive, dedication, and success is an inspiration to all of us in the rare disease community: